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Support for Individuals, Families, & Professionals  
 
     

Family Networking

Family Networking provides the opportunity for you to get in contact with other individuals affected by Waardenburg Syndrome. Many people who have WS find it helpful to share their experiences and information with other people who may have had similar experiences.

If you would like to be put into contact with other people with WS or if you would like to help by joining our network and speaking to others, click here.

 

Family Stories

The following individuals and families have chosen to share their stories of dealing with WS.

Betty and Michael's Story

Celeste B.'s Story

Story from a Teenager with WS

Mike's Story

Rick and Alex's Story

Tom's Story

Caroline's Story

Elijah's Story

Rob's Story


If you are interested in sharing your story on this website, please email kahna@muohio.edu for more information.

 

 
 

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